Written Assembly Questions tabled on 20 October 2015 for answer on 27 October 2015
R - Signifies the Member has declared an interest.
W - Signifies that the question was tabled in Welsh.
(Self identifying Question no. shown in brackets)
Written Questions must be tabled at least five working days before they are to be answered. In practice, Ministers aim to answer within seven/eight days but are not bound to do so. Answers are published in the language in which they are provided, with a translation into English of responses provided in Welsh.
To ask the Minister for Health and Social Services
Darren Millar (Clwyd West): What assessment has the Minister made of the prevalence of Henoch-Schönlein purpura disease in Wales? (WAQ69309)
Answer received on 30 October 2015
The Minister for Health and Social Services (Mark Drakeford): The European Union reference portal for Rare Diseases, Orphanet sets out prevalence and incidence which can be found here:
Darren Millar (Clwyd West): What support is available for Henoch-Schönlein purpura patients in Wales? (WAQ69310)
Answer received on 30 October 2015
Mark Drakeford: Henoch-Schönlein purpura is a rare condition, usually managed in primary care but with referral to hospital-based specialists if appropriate. Information and support is available online and from charities, such as Vasculitis UK.
Darren Millar (Clwyd West): What research, if any, has the Welsh Government commissioned into Henoch-Schönlein purpura disease? (WAQ69311)
Answer received on 30 October 2015
Mark Drakeford: The Welsh Government does not currently fund any research into this area through Health and Care Research Wales. Open grant funding schemes are available to researchers in Wales, providing opportunities for researchers to apply for funding for translational research with a particular focus on applied and public health research in their specific area of expertise.
Darren Millar (Clwyd West): What action is the Welsh Government taking to raise awareness of Henoch-Schönlein purpura disease among health professionals in Wales? (WAQ69312)
Answer received on 30 October 2015
Mark Drakeford: The Welsh Government is not taking any specific action in relation to Henoch-Schönlein purpura however, action is being taken to raise the profile and awareness of rare diseases generally, as set out in the Rare Diseases Implementation Plan: http://gov.wales/topics/health/nhswales/plans/rare/?lang=en