WRITTEN STATEMENTS OF OPINION TABLED ON 16/05/2013

R Signifies the Member has declared an interest

OPIN-2013-0187 Epilepsy Deaths Register

Raised By:

Aled Roberts

Subscribers:

Byron Davies 16/05/2013

David Rees 16/05/2013

Peter Black 16/05/2013

Llyr Huws Gruffydd 16/05/2013

Alun Ffred Jones 16/05/2013

Janet Finch-Saunders 17/05/2013

Mohammad Asghar 17/05/2013

Darren Millar 17/05/2013

Paul Davies 17/05/2013

Eluned Parrott 20/05/2013

Antoinette Sandbach 20/05/2013

Mark Isherwood 20/05/2013

David Melding 24/05/2013

Epilepsy Deaths Register

The National Assembly for Wales:

1. Notes that:

• in Wales, 1 in 94 people has epilepsy;

• in the UK over 1000 people die each year of epilepsy-related causes; and

• Sudden Unexpected Death in Epilepsy (SUDEP) accounts for half of these deaths.

2. Recognises the Epilepsy Deaths Register as a single point for reporting all epilepsy-related deaths in the UK and acknowledges its contribution to the research, awareness and treatment of epilepsy.

3. Calls on the Welsh Government to follow the UK Government by endorsing the Epilepsy Deaths Register.